The Uveitis Patient Passport: A Self-Care Tool

Area of Science:

• Ophthalmology
• Patient Self-Care
• Chronic Disease Management

Background:

• Chronic inflammatory eye diseases like uveitis require ongoing patient management.
• There is a need for innovative tools to support uveitis patients in self-care and communication.

Purpose of the Study:

• To evaluate the successful introduction of the Uveitis Patient Passport (UPP) into a tertiary uveitis service.
• To assess patient experience with the UPP as a self-care tool.

Main Methods:

• The UPP was developed in consultation with patients and a multidisciplinary team.
• Patient experience was evaluated using questionnaires and mixed quantitative and qualitative methods.

Main Results:

• The UPP was utilized as a self-care resource and facilitated cross-specialty communication.
• Patient feedback highlighted needs for improved clinician engagement and a potential smartphone application.

Conclusions:

• The UPP's introduction was successful, functioning effectively as a patient self-care tool.
• The UPP has the potential to improve patient outcomes in uveitis management.