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Development of a web-based assessment tool that evaluates the meal situation when a child has a percutaneous

Margaretha Jenholt Nolbris1,2, Ann-Louise Gustafsson2, Carina Fondin2

  • 1Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, 405 30, Gothenburg, Sweden.

BMC Pediatrics
|March 13, 2019
PubMed

Insights

This study developed and validated a web-based tool to assess the comfort of children with cancer using a percutaneous endoscopic gastrostomy (PEG) for nutrition and medication. The tool aims to improve care quality and detect early PEG issues.

Area of Science:

  • Pediatric Oncology
  • Medical Device Technology
  • Patient-Reported Outcomes

Background:

  • Children with cancer experience treatment side effects like malnutrition.
  • Percutaneous endoscopic gastrostomy (PEG) supports nutrition and medication for these children.
  • Limited data exists on pediatric PEG user comfort.

Purpose of the Study:

  • Develop a web-based assessment tool for evaluating the mealtime situation of children with cancer using a PEG.
  • Validate the content of this tool with input from children, families, and healthcare professionals.

Main Methods:

  • Qualitative design with purposive sampling.
  • Interviews and member checks with five children, five parents, five nurses, and five pediatricians.
  • Manifest qualitative content analysis of collected data.

Main Results:

  • Identified four categories for tool revision: difficult vocabulary, multi-part questions, need for item splitting, and layout improvements.
  • Revised the web-based tool based on participant feedback.
  • Member checks confirmed the revisions, validating the tool's content.

Conclusions:

  • A validated web-based tool can assess the meal situation for pediatric cancer patients with PEGs.
  • The tool may enable early detection of PEG issues, facilitating timely healthcare intervention.
  • This tool has the potential to enhance the overall quality of care for children with PEGs.
Abstract

Keywords:
CancerChildGastrostomy tubeWeb tool

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