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Epidemiology of Children With Multiple Complex Chronic Conditions in a Mixed Urban-Rural US Community
Kara A Bjur1, Chung-Il Wi2, Euijung Ryu2
1Mayo Clinic, Rochester, Minnesota bjur.kara@mayo.edu.
Insights
The prevalence and incidence of children with multiple complex chronic conditions (MCCs) significantly increased from 1999 to 2014. Health disparities exist, highlighting the need for better healthcare planning for these children.
Area of Science:
- Pediatric Health Services Research
- Chronic Disease Epidemiology
- Health Disparities Research
Background:
- Children with multiple complex chronic conditions (MCCs) incur disproportionate healthcare costs and mortality.
- Limited data exists on temporal trends of MCCs in pediatric populations, hindering effective healthcare planning and policy.
- Understanding these trends is crucial for resource allocation and improving care for vulnerable children.
Purpose of the Study:
- To assess temporal trends in the prevalence and incidence of pediatric MCCs within a defined US population.
- To characterize MCCs by age, sex, ethnicity, and socioeconomic status (SES).
- To identify potential health disparities associated with MCCs in children.
Main Methods:
- A population-based, repeated cross-sectional study utilizing the Rochester Epidemiology Project in Olmsted County, Minnesota (1999-2014).
- Identification of children with MCCs using the Pediatric Complex Chronic Conditions Classification System version 2.
- Calculation of 5-year period prevalence and incidence rates, adjusted for age, sex, and ethnicity.
Main Results:
- Five-year prevalence of pediatric MCCs increased from 1200 to 1938 per 100,000 persons.
- Five-year incidence of pediatric MCCs rose from 256 to 335 per 100,000 person-years.
- MCCs were more prevalent in children with lower SES and from racial minority backgrounds.
Conclusions:
- Significant increases in both prevalence and incidence of pediatric MCCs were observed over the study period.
- Health disparities exist among children with MCCs, particularly concerning socioeconomic status and race.
- Further assessment of clinical and financial outcomes is necessary for informed healthcare planning and resource management for children with MCCs.
Objectives:
Children with multiple complex chronic conditions (MCCs) represent a small fraction of our communities but a disproportionate amount of health care cost and mortality. Because the temporal trends of children with MCCs within a geographically well-defined US pediatric population has not been previously assessed, health care planning and policy for this vulnerable population is limited.
Methods:
In this population-based, repeated cross-sectional study, we identified and enrolled all eligible children residing in Olmsted County, Minnesota, through the Rochester Epidemiology Project, a medical record linkage system of Olmsted County residents. The pediatric complex chronic conditions classification system version 2 was used to identify children with MCCs. Five-year period prevalence and incidence rates were calculated during the study period (1999-2014) and characterized by age, sex, ethnicity, and socioeconomic status (SES) by using the housing-based index of socioeconomic status, a validated individual housing-based SES index. Age-, sex-, and ethnicity-adjusted prevalence and incidence rates were calculated, adjusting to the 2010 US total pediatric population.
Results:
Five-year prevalence and incidence rates of children with MCCs in Olmsted County increased from 1200 to 1938 per 100 000 persons and from 256 to 335 per 100 000 person-years, respectively, during the study period. MCCs tend to be slightly more prevalent among children with a lower SES and with a racial minority background.
Conclusions:
Both 5-year prevalence and incidence rates of children with MCCs have significantly increased over time, and health disparities are present among these children. The clinical and financial outcomes of children with MCCs need to be assessed for formulating suitable health care planning given limited resources.
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