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Children's and parents' views on hospital contact isolation: A qualitative study to highlight children's perspectives
Evelyn N Alvarez1, Megan C Pike2,3, Hilary Godwin1
1Department of Environmental Health Sciences, UCLA Fielding School of Public Health, USA.
Insights
Hospitalized children show resilience but have varying understanding of isolation. Parental and child perspectives on isolation experiences often differ, highlighting the need for child-centered approaches.
Area of Science:
- Pediatric Healthcare
- Infection Control
- Patient Experience
Background:
- Limited research exists on hospitalized children's experiences with contact isolation precautions.
- Existing studies often rely on parental reports rather than direct child interviews, especially for children in isolation.
Purpose of the Study:
- To explore hospitalized children's experiences with hospital contact isolation precautions.
- To compare children's and parents' perspectives on the isolation experience.
Main Methods:
- Conducted semi-structured, open-ended interviews with hospitalized children.
- Administered written surveys to parents to gather their perspectives on their child's experiences.
Main Results:
- Children demonstrated resilience during isolation, but their understanding of infection pathophysiology varied.
- Significant discordance was found between parent and child perceptions regarding the isolation experience, preferred activities, and understanding of isolation reasons.
Conclusions:
- The negative impact of isolation on children may outweigh its benefits, emphasizing the need for child-friendly isolation signage.
- Differences in parental and child perceptions underscore the necessity for further research focusing on children's perspectives and parent-child dyadic data.
Background:
To date, there has been a paucity of studies conducted on the experiences of children under hospital contact isolation precautions. Furthermore, the studies that have examined children's experiences at the hospital typically reflect the perspectives of their parents, and few have directly involved interviews with children themselves, and even fewer with children in isolation.
Methods:
To address this gap, we conducted semi-structured, open-ended interviews with hospitalized children to assess their experiences of being placed in isolation. Where possible, the children's parents also completed written surveys to assess parental perspectives on their child's experiences.
Results:
Two important findings of the study were the children's resilience during a difficult time and children's varying awareness of the pathophysiology of infections as it relates to isolation precautions. Examination of the parent-child dyads elucidated some discordance between parents' and children's perspectives on how children experienced their isolation, on what the children's preferred activities were while in isolation, and how much children understood about the reasons they were in isolation.
Conclusion:
This study supports earlier studies that suggest that the benefits of isolation procedures may be outweighed by how negatively isolation is experienced by patients, particularly when the patients are children. It also highlights the need for child-friendly isolation signs. Because parental and child perceptions differed in cases where data from both were available, this study suggests larger studies on children's perspectives and/or on parent-child dyads are needed.
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