BRCA1/2 Variant Data-Sharing Practices.

Juli M Bollinger¹, Abhi Sanka¹, Lena Dolman¹+2

• ¹Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Abhi Sanka is a Science Policy Fellow at the Science and Technology Policy Institute. He was formerly a Research Associate at the School for the Future of Innovation in Society at Arizona State University. Lena Dolman, M.S., is currently a medical student at McMaster University, Hamilton, Ontario, Canada. She was formerly a manager of Strategy and Outreach, as well as manager of the Clinical & Phenotypic Data Capture Work Stream, for the Global Alliance for Genomics and Health. Rachel G. Liao, Ph.D., is a Scientific Advisor to the Director at the Broad Institute of MIT and Harvard. She was formerly a manager for the Global Alliance for Genomics and Health, where she led the successful launch and growth of the BRCA Challenge project and its foundational product, the BRCA Exchange. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU.