Communication strategies for rare cancers: a systematic review protocol

Area of Science:

• Oncology
• Health Communication
• Systematic Review

Background:

• Rare cancers represent a significant portion of cancer diagnoses in Europe, often associated with poorer patient outcomes.
• A key factor contributing to these outcomes is a general deficit in knowledge and awareness surrounding rare cancers.
• Effective communication strategies are crucial for addressing these challenges.

Purpose of the Study:

• To systematically review and analyze existing global communication strategies for rare cancers.
• To identify gaps and limitations in current communication approaches.
• To propose opportunities for improving the dissemination of information on rare cancers.

Main Methods:

• A comprehensive systematic review of English-language literature published before November 2018.
• Searches across multiple electronic databases (MEDLINE, PubMed, EMBASE, Web of Science, PsycINFO, CINAHL Plus, Cochrane) and grey literature.
• Screening of titles, abstracts, and full texts, followed by bias assessment and potential meta-analysis or narrative synthesis.

Main Results:

• The review will synthesize findings on various communication strategies used for rare cancers worldwide.
• It will highlight the strengths and weaknesses of different communication approaches.
• Potential gaps in available resources and information dissemination will be identified.

Conclusions:

• This review aims to provide a comprehensive overview of rare cancer communication strategies.
• Findings will contribute to improving the long-term diagnosis and management of rare cancers.
• Enhanced communication can empower patients and healthcare professionals involved with rare cancers.