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When Citizens Do Science: Stories from Labs, Garages, and Beyond
Narrative Inquiry in Bioethics
|April 30, 2019
Summary
Citizen science narratives reveal novel ethical, societal, and policy implications. This collection of personal accounts and expert commentaries informs multidisciplinary discussions on regulating citizen science research.
Area of Science:
- Citizen Science
- Ethics in Research
- Societal Impact
Background:
- Citizen science involves diverse public participation in research.
- Conventional research categories are challenged by citizen science initiatives.
- Ethical, societal, and policy dimensions require examination.
Purpose of the Study:
- To present personal narratives of citizen science engagement.
- To analyze the ethical, societal, scientific, philosophical, and policy implications of citizen science.
- To foster multidisciplinary discussion on citizen science structures.
Main Methods:
- Collection of twelve personal narratives from citizen scientists.
- Inclusion of three expert commentaries on the narratives.
- Analysis of implications across ethical, societal, scientific, and policy domains.
Main Results:
- Citizen science participation spans individual self-experimentation to large-scale international projects.
- Narratives highlight novel challenges to existing regulations, laws, and ethical frameworks.
- Expert commentaries offer insights into human subject research, philosophy of science, and communication in citizen science.
Conclusions:
- Citizen science necessitates a re-evaluation of who is a scientist and what constitutes research.
- The symposium provides concrete examples to inform ethical structure development in citizen science.
- Discussions offer new perspectives for reconsidering established research and regulatory structures.
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