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Related Experiment Videos

A silver lining playbook? My mom's death.

Mary R Talen1

  • 1Erie Family Health Center.

Families, Systems & Health : the Journal of Collaborative Family Healthcare
|May 7, 2019
PubMed
Summary

Advance care planning documents are crucial but may not capture a patient's full personhood. Electronic Medical Records (EMR) can trigger life-saving protocols, yet overlook individual desires and quality of life.

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Area of Science:

  • Medical Ethics
  • Gerontology
  • Health Informatics

Background:

  • Advance care planning (ACP) involves documenting patient wishes for end-of-life care.
  • Electronic Medical Records (EMR) store critical patient information, including advance directives.
  • Protocols exist to initiate life-sustaining treatments based on medical data.

Purpose of the Study:

  • To explore the limitations of ACP and EMR in capturing patient personhood during critical care.
  • To highlight the disconnect between documented wishes and clinical decision-making in emergencies.

Main Methods:

  • A narrative case study detailing a personal experience with a mother's end-of-life care.
  • Analysis of the role of advance care planning documents and EMR in emergency situations.

Main Results:

  • Despite having a documented 'playbook' and EMR information, emergency interventions were initiated against the patient's and family's wishes.
  • The EMR's focus on uncomplicated medical history triggered life-saving protocols without assessing the patient's personhood, functional status, or desires.

Conclusions:

  • Standard medical protocols and EMR data may not adequately incorporate a patient's holistic needs and personal values.
  • There is a critical need to integrate comprehensive patient personhood assessment into end-of-life care decision-making, beyond documented directives.

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