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Concise Consent Forms Appreciated-Still Not Comprehended: Applying Revised Common Rule Guidelines in Online Studies
Evan K Perrault1, Seth P McCullock1
11 Purdue University, West Lafayette, IN, USA.
Summary
Researchers created a concise, 71-word informed consent process for online studies. While participants preferred this streamlined approach, comprehension remained low, highlighting a need for improved methods to ensure truly informed consent.
Area of Science:
- Psychology
- Human-Computer Interaction
- Research Ethics
Background:
- Informed consent documents have become increasingly lengthy, posing challenges for participant understanding.
- Recent federal Common Rule revisions emphasize concise and comprehensible consent forms.
- Online research presents unique challenges for traditional informed consent procedures.
Purpose of the Study:
- To develop and evaluate a streamlined, 71-word informed consent process for an online study.
- To assess participant preference for a concise consent process versus traditional methods.
- To investigate the impact of a streamlined process on participant comprehension.
Main Methods:
- A 71-word informed consent form was developed for an online study.
- Participants were offered a choice to proceed directly to the study or seek more information.
- Participant comprehension and preference for the consent process were assessed.
Main Results:
- 100% of participants (N=429) opted to proceed directly to the study without seeking additional information.
- Participants favored the streamlined consent process.
- Despite preference, participants comprehended only about half of the information presented in the streamlined consent.
Conclusions:
- A highly streamlined informed consent process was preferred by participants in an online study.
- Current streamlined methods may compromise the 'informed' aspect of informed consent due to low comprehension.
- Further research, supported by Institutional Review Boards (IRBs), is needed to balance conciseness with comprehension in online informed consent.
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