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Assessing psychosocial risk in pediatric cystic fibrosis

Stephanie S Filigno1,2, Jamie Miller3, Susan Moore3

  • 1Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, Ohio.

Pediatric Pulmonology
|June 26, 2019
PubMed

Insights

A new tool, the Psychosocial Assessment Tool for Cystic Fibrosis (PAT-CF), reliably screens for psychosocial risks in children with CF. Early identification aids targeted support, improving quality of life and treatment adherence.

Area of Science:

  • Pediatric Psychology
  • Clinical Psychology
  • Health Outcomes Research

Background:

  • Psychosocial risk factors significantly influence quality of life, treatment adherence, and health outcomes in patients.
  • Currently, no standardized, comprehensive psychosocial risk screener is routinely used in cystic fibrosis (CF) care.
  • Understanding and addressing these risks is crucial for holistic patient management.

Purpose of the Study:

  • To determine the range and severity of psychosocial risk in a pediatric CF population.
  • To assess the reliability of a comprehensive psychosocial screener in routine pediatric CF clinical care.
  • To explore the associations between identified psychosocial risks and key health outcome determinants.

Main Methods:

  • Parents of 154 children with CF completed the Psychosocial Assessment Tool for Cystic Fibrosis (PAT-CF), a CF-specific psychosocial risk assessment.
  • The PAT-CF was administered during regular CF clinical care appointments.
  • Data analysis focused on internal consistency, reliability, and correlations with demographic factors.

Main Results:

  • The PAT-CF demonstrated acceptable internal consistency (Cronbach's α = 0.71 for the total score).
  • Reliability findings were comparable to those in other pediatric medical populations.
  • Psychosocial risk levels varied, with 7% in the highest risk category, 41% in the targeted risk category, and 52% in the lowest risk category. Increased risk correlated with Medicaid status and lower parental education; private insurance was linked to decreased risk.

Conclusions:

  • The PAT-CF is a feasible and parent-acceptable tool for comprehensive psychosocial risk assessment in routine CF care.
  • Early identification of psychosocial risks enables proactive, targeted support and interventions.
  • Implementing the PAT-CF can enhance quality of life and support sustained daily care for children with CF and their families.
Abstract

Keywords:
cystic fibrosispsychosocial riskscreeningwellness

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