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Challenges to Diabetes Self-Management in Emerging Adults With Type 1 Diabetes
Neesha Ramchandani1, Niobe Way2, Gail D'Eramo Melkus1
1New York University Rory Meyers College of Nursing, New York, New York.
The Diabetes Educator
|July 16, 2019
Summary
Emerging adults with type 1 diabetes face challenges balancing self-management with life priorities. They desire control and personalized provider connections for better diabetes care.
Area of Science:
- Endocrinology
- Adolescent Medicine
- Behavioral Science
Background:
- Type 1 diabetes (T1DM) management requires significant self-discipline, especially during emerging adulthood.
- Transitioning from pediatric to adult care presents unique developmental, situational, and organizational hurdles for young adults with T1DM.
Purpose of the Study:
- To explore the challenges faced by emerging adults (18-29 years) with T1DM.
- To understand their perspectives on developing a supportive diabetes self-management (DSM) program for transitional care.
Main Methods:
- Qualitative descriptive study using Meleis's Transition Framework.
- Purposive sampling of 21 emerging adults with T1DM from an urban academic medical center.
- Data collected via focus groups and interviews, supplemented by demographic and clinical information.
Main Results:
- Four key themes emerged: balancing diabetes with life, desire for control, the hidden burden of diabetes, and the need for provider connection.
- Insulin pumps and continuous glucose monitors aided DSM challenges.
- Individualized approaches to T1DM management and perspectives were noted.
Conclusions:
- Emerging adults with T1DM prioritize glycemic control but struggle to balance it with competing life demands.
- Personalized patient-provider interactions are crucial for effective clinical follow-up.
- Further research is warranted to explore identified themes in T1DM transitional care.
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