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Related Experiment Video

Updated: Jan 22, 2026

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Perinatal palliative care: a dedicated care pathway.

Francesca Rusalen1, Maria Elena Cavicchiolo2, Paola Lago2

  • 1Woman's and Child's Department, Pediatric Pain and Palliative Care Service, University of Padua, Padova, Italy francesca.rusalen@aopd.veneto.it.

BMJ Supportive & Palliative Care
|July 21, 2019
PubMed
Summary

Perinatal palliative care (PnPC) pathways were developed for eligible newborns and families, ensuring better access and quality of care. This emerging field requires dedicated multidisciplinary approaches for optimal outcomes.

Keywords:
life-limiting diseaseslife-threatening diseasesneonatal mortalityneonatal pain managementpaediatric palliative careperinatal palliative care

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Area of Science:

  • Perinatal Medicine
  • Palliative Care
  • Healthcare Pathway Development

Background:

  • Perinatal palliative care (PnPC) is crucial for improving outcomes in vulnerable newborns and their families.
  • Ensuring equitable access to specialized PnPC services remains a significant challenge.

Purpose of the Study:

  • To establish a shared care pathway for perinatal palliative care (PnPC).
  • To ensure accessibility and quality of care for eligible fetuses, infants, and parents.

Main Methods:

  • A multidisciplinary workgroup conducted a literature review using the GRADE method.
  • Ethical and legal references were incorporated into pathway development.
  • Eligible populations were categorized into three distinct groups for tailored care.

Main Results:

  • Defined best practices and care settings for PnPC.
  • Established guidelines for family support, end-of-life care, and postmortem counseling.
  • Provided recommendations for conflict mediation within PnPC.

Conclusions:

  • Perinatal palliative care (PnPC) is an evolving specialty within pediatric palliative care.
  • Development of dedicated, shared care pathways is essential for PnPC accessibility and quality.
  • Multidisciplinary collaboration is key to addressing the complex needs of this population.