Using a Web-Based Data Collection Platform to Implement an Effective Electronic Patient-Reported Outcome Registry | JoVE Visualize

Area of Science:

Health Informatics
Orthopaedic Surgery
Patient-Reported Outcomes

Background:

Modern healthcare prioritizes patient-centered care, necessitating the routine collection of patient-reported outcome measures (PROMs).
Orthopaedic practices are increasingly adopting PROMs, but challenges exist in integrating this data collection into clinical workflows.
Existing PROM collection methods can impose significant burdens on both patients and healthcare providers, potentially impacting efficiency and adherence.

Purpose of the Study:

To present a technique guide for designing and implementing a patient registry for PROMs in an ambulatory orthopaedic clinic.
To demonstrate how electronic PROM collection systems, specifically using Research Electronic Data Capture (REDCap), can mitigate workflow disruptions and reduce patient/provider burden.
To outline the fundamental steps for establishing a functional and efficient patient registry using REDCap, an accessible data collection platform.

Main Methods:

Utilizing Research Electronic Data Capture (REDCap) as the chosen platform for developing the PROM-based clinical registry.
Designing the registry with a focus on maximizing convenience and efficiency to streamline clinical workflow.
Outlining a step-by-step approach for creating a simple yet effective patient registry suitable for ambulatory orthopaedic settings.

Main Results:

The implementation of an electronic PROM collection system using REDCap can effectively address the challenges of routine PROM data gathering.
A deliberately designed system enhances convenience and efficiency, thereby reducing the burden on patients and orthopaedic providers.
The described methodology provides a practical framework for establishing a PROM-based clinical registry within an orthopaedic practice.

Conclusions:

Electronic PROM collection systems, particularly when built using accessible platforms like REDCap, offer a viable solution to integrate PROMs seamlessly into orthopaedic clinical practice.
The successful implementation of such systems supports patient-centered care by optimizing data collection processes and minimizing disruptions.
This guide provides orthopaedic clinics with a clear pathway to develop efficient PROM registries, ultimately enhancing both clinical workflow and patient outcomes.