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Area of Science:

  • Research Methodology
  • Data Science
  • Scientific Communication

Background:

  • Open data sharing offers significant benefits, including enhanced research transparency, reproducibility, and innovation.
  • Barriers to data sharing include resource constraints, patient privacy concerns, funding limitations, and intellectual property issues.
  • Despite challenges, there is a strong interest from researchers and patients in developing shared data resources.

Purpose of the Study:

  • To explore the spectrum of current data openness and access practices.
  • To evaluate the strengths and weaknesses of existing data access platforms.
  • To propose guidelines for improving future data sharing practices.

Main Methods:

  • Perspective piece analyzing current data sharing landscape.
  • Review of existing data access platforms and their functionalities.
  • Identification of barriers and facilitators for data sharing.

Main Results:

  • Current data sharing exhibits a wide range of 'openness' levels.
  • Existing platforms have varying degrees of success in addressing sharing barriers.
  • Specific examples of current data sharing platforms are presented.

Conclusions:

  • Revised data sharing practices are needed to overcome existing barriers.
  • Guidelines are proposed to foster more effective and equitable data sharing.
  • Balancing data accessibility with privacy and resource concerns is crucial for sustainable data sharing.