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IPS Governance Framework: Current Practices in Specification Use and Updates
Robert Stegwee1,2, Hans Gille2, Catherine Chronaki3
1CEN TC/251, Brussels, Belgium.
Studies in Health Technology and Informatics
|July 27, 2019
Summary
This study introduces a governance framework for sustainable International Patient Summaries, emphasizing trust and data flow in digital health systems. It ensures better health data management through co-creation and best practices.
Area of Science:
- Health Informatics
- Digital Health Systems
- Health Data Governance
Background:
- The eStandards methodology highlights trust and data flow as crucial for effective health systems.
- Digital health initiatives require co-creation, governance, and alignment for interoperability.
- Existing best practices and common components aid in advancing health data interoperability.
Purpose of the Study:
- To propose a governance framework for sustainable International Patient Summaries.
- To address requirements management, intelligence gathering, specification use, and updates for health data.
- To enhance the management and interoperability of international patient data.
Main Methods:
- Development of a governance framework based on the eStandards methodology.
- Leveraging a digital health compass with multi-stakeholder perspectives.
- Analysis of 14 patient summary projects and initiatives in Europe and the United States.
Main Results:
- A proposed governance framework for International Patient Summaries.
- Identification of key elements for sustainable health data governance.
- Insights from diverse European and US patient summary projects.
Conclusions:
- The proposed framework supports sustainable governance for International Patient Summaries.
- Co-creation and multi-stakeholder engagement are vital for digital health standards.
- Effective governance is essential for trustworthy and interoperable health data exchange.
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