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Impact of family-centered tailoring of pediatric diabetes self-management resources

Rosanna Fiallo-Scharer1, Mari Palta2,3, Betty A Chewning4

  • 1Department of Pediatrics, Medical College of Wisconsin/Children's Hospital of Wisconsin, Milwaukee, Wisconsin.

Pediatric Diabetes
|July 30, 2019
PubMed

Insights

A family-centered approach tailoring diabetes self-management resources improved outcomes for some teens. Addressing specific barriers, like motivation, showed significant A1c declines and improved quality of life for parents.

Area of Science:

  • Pediatric Endocrinology
  • Diabetes Self-Management Education
  • Family-Centered Care

Background:

  • The American Diabetes Association advocates for family-centered approaches to Type 1 Diabetes (T1D) management.
  • Identifying and addressing specific family barriers to self-management is crucial for effective T1D care.

Purpose of the Study:

  • To evaluate an intervention designed to tailor self-management resources to families' unique T1D self-management barriers.
  • To assess the impact of this tailored approach on glycemic control and quality of life.

Main Methods:

  • A randomized controlled trial involving 214 children (8-16 years) with T1D and their parents across two sites.
  • Intervention group received tailored resources based on identified barriers; control group received usual care.
  • Outcomes (A1c, parent/child Quality of Life) were analyzed using mixed-effects models with repeated measures.

Main Results:

  • Overall, no significant intervention effect on A1c or Quality of Life was observed when combining all participants.
  • However, at one site, teens (13-16 years) in the intervention group showed a significant monthly decline in A1c, particularly those with higher baseline A1c (>8.5%).
  • Improvements in this subgroup were linked to addressing motivational barriers, and parents of intervention youth reported increased Quality of Life.

Conclusions:

  • Tailored self-management resources may offer benefits for specific pediatric T1D populations.
  • Patient characteristics and specific self-management barriers should guide resource allocation in T1D interventions.
  • Further research is needed to identify optimal tailoring strategies for diverse T1D patient groups.
Abstract

Keywords:
behavioral therapypatient-centered carequality of lifeself-caretype 1 diabetes

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