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Related Experiment Videos

'Homemade': Building, mending, and coordinating a care network.

Attila Bruni1, Francesco Miele2, Enrico Maria Piras3

  • 1University of Trento, Trento, Italy.

Social Science & Medicine (1982)
|August 9, 2019
PubMed
Summary

Elderly individuals with chronic conditions perform significant invisible work coordinating their care networks. This essential labor supports healthcare professionals and navigates complex public and private health services.

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Area of Science:

  • Sociology of Health and Illness
  • Healthcare Management
  • Public Health Policy

Background:

  • European healthcare systems face challenges from increased life expectancy and co-morbidities.
  • Growing reliance on patient self-management and the expansion of private healthcare services.
  • Care provision is increasingly fragmented across diverse public and private entities.

Purpose of the Study:

  • To investigate the 'invisible work' citizens perform in managing complex care networks.
  • To understand how elderly individuals with chronic conditions navigate care services and professionals.
  • To analyze the activation, mending, and coordination efforts within care networks.

Main Methods:

  • Qualitative research methodology.
  • Study conducted in the Province of Trento, Italy.
Keywords:
Care networkInvisible workItalyPatientsQualitative research

Related Experiment Videos

  • Focus on elderly individuals with chronic conditions managing care outside formal institutions.

    • Main Results:

    • Citizens undertake substantial unacknowledged labor in coordinating healthcare.
    • Elderly individuals actively manage and integrate services from various providers.
    • The study highlights the critical role of informal care network management.

    Conclusions:

    • The invisible work of citizens is crucial for the functioning of modern healthcare networks.
    • Healthcare policy and research must acknowledge and support the efforts of individuals managing complex care.
    • Further investigation into citizen-led care coordination is warranted.