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Knowledge and attitudes towards epilepsy in Saudi families
Hanan A Neyaz1, Hana A Aboauf1, Maha E Alhejaili1
1Faculty of Medicine and General Surgery at Taibah University, Almadinah Almunawwarah, KSA.
Insights
Many families in Saudi Arabia hold misconceptions about childhood epilepsy, believing it is linked to Jinn. This study highlights the need for community education to correct these beliefs and improve understanding of this common neurological disorder.
Area of Science:
- Paediatric Neurology
- Neuroscience
- Public Health
Background:
- Epilepsy is a prevalent paediatric neurological disorder.
- Lack of public awareness and prevalent misconceptions negatively impact children with epilepsy.
- Addressing misinformation is crucial for supporting affected children and families.
Purpose of the Study:
- To assess knowledge and attitudes towards epilepsy.
- To compare families of epileptic children with families of children without epilepsy.
- Study conducted in Almadinah Almunawwarah, Kingdom of Saudi Arabia (KSA).
Main Methods:
- Cross-sectional study conducted between March and December 2015.
- Data collected using a self-administered questionnaire.
- Participants included families of epileptic and non-epileptic children.
Main Results:
- Out of 168 participants, 150 completed the questionnaire (64 families of epileptic children, 86 families of normal children).
- 44.7% of families believed epilepsy was related to Jinn.
- Belief in Jinn causation was associated with lower family education levels, urban/rural residence, epilepsy type, disease duration, and treatment duration.
Conclusions:
- Significant misconceptions regarding epilepsy persist in the community, even among families of affected children.
- There is a critical need to correct existing knowledge and attitudes towards epilepsy.
- Mass public education programs and campaigns are recommended to improve understanding and combat misinformation.
Objectives:
Epilepsy is one of the most common paediatric neurological disorders. Lack of awareness regarding epilepsy among the general population influences the lives of epileptic children. Misconceptions and misinformation about epilepsy in children should be identified and corrected. The aim of this study was to assess the knowledge and attitudes towards epilepsy in families of epileptic children and families of normal children in Almadinah Almunawwarah, KSA.
Methods:
A cross-sectional study was conducted at Maternity and Children's Hospital from March 2015 to December 2015. A self-administered questionnaire was designed to collect data from the participant families.
Results:
Of 168 participants, 150 completed the questionnaire. These included 64 families of epileptic children and 86 families of normal children. Of all the responding families, 67 families (44.7%) thought that epilepsy was related to Jinn. Logistic regression analysis showed that this belief was dependent on the family education level (p = 0.004) and to the area of residence, either urban or rural (p = 0.04). In families of epileptic children, the link of epilepsy to Jinn was related to clinical factors, such as the type of epilepsy (p = 0.023), disease duration (p = 0.039), and duration of treatment (p = 0.028).
Conclusions:
Our community still has misconceptions regarding epilepsy, even among families of epileptic children. Knowledge and attitudes toward epilepsy must be corrected. Planned programs and campaigns should be conducted in the form of mass society education.
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