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Testing Sensory and Multisensory Function in Children with Autism Spectrum Disorder
Published on: April 22, 2015
Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder
Serene Habayeb1,2, Sarah Dababnah3, Aesha John4
1Division of Pediatric Neuropsychology, Children's National Health System, Center for Autism Spectrum Disorder, 15245 Shady Grove Rd., Suite 350, Rockville, MD, 20850, USA. shabayeb@childrensnational.org.
Abstract:
Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families.
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