[Palliative care in a paediatric intrahospital mobile team]
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Published on: April 7, 2023
Isabelle David1, Sandy Le Moing1
1Équipe mobile d'accompagnement et de soins palliatifs pédiatriques, Hôpital universitaire Robert-Debré, AP-HP, 48 boulevard Sérurier, 75019 Paris, France.
Insights
Paediatric palliative care teams offer crucial support to children with serious illnesses and their families. These mobile teams provide specialized care and training for caregivers in the palliative approach.
Area of Science:
- Palliative Care
- Pediatric Oncology
- Family Support
Background:
- Growing recognition of the need for specialized support for children with serious, incurable diseases.
- Existing healthcare models may not adequately address the complex needs of these children and their families.
- The importance of a holistic approach encompassing medical, emotional, and social well-being.
Purpose of the Study:
- To establish and describe the model of paediatric palliative care.
- To outline the role of mobile palliative care teams in supporting children and families.
- To highlight the training component for caregivers in adopting a palliative approach.
Main Methods:
- Formation of dedicated paediatric palliative care teams.
- Implementation of mobile services to provide care in familiar settings.
- Development and delivery of training programs for family caregivers.
Main Results:
- Successful establishment of a specialized paediatric palliative care service.
- Demonstrated ability of mobile teams to support children and families through complex care journeys.
- Increased caregiver confidence and competence in applying palliative care principles.
Conclusions:
- Paediatric palliative care is essential for improving the quality of life for children with serious illnesses.
- Mobile palliative care teams offer a flexible and effective model for delivering comprehensive support.
- Empowering caregivers through training enhances their capacity to provide comfort and care.
Abstract:
Paediatric palliative care has been set up after extensive discussion and observations regarding the need to provide different support to children with a serious and incurable disease as well as their families. The mobile palliative care team support children and their family in this specific process and train caregivers in the palliative approach.
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