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Media Coverage of Ethical Issues in Predictive Genetic Testing: A Qualitative Analysis
Bettina Zimmermann1, Bernice Elger1, David Shaw1,2
1Institute for Biomedical Ethics, University of Basel , Basel , Switzerland.
AJOB Empirical Bioethics
|October 10, 2019
Summary
Newspaper coverage of predictive genetic testing (PGT) addresses many ethical concerns but omits key issues like incidental findings. Public understanding of PGT
Area of Science:
- Genetics
- Bioethics
- Media Studies
Background:
- Predictive genetic testing (PGT) presents significant ethical challenges.
- Public interest in PGT is growing, with mass media serving as a primary information source.
- Newspapers play a crucial role in shaping public perception of PGT.
Purpose of the Study:
- To analyze the ethical issues discussed in British newspaper reporting on PGT.
- To identify gaps in media coverage of PGT's ethical dimensions.
Main Methods:
- Content analysis of articles on PGT from The Guardian and Daily Telegraph (2011-2016).
- Qualitative and semi-quantitative assessment of ethical issues mentioned.
- Comparison of reporting frequency and depth between the two newspapers.
Main Results:
- Most scientific and ethical literature issues were covered, but incidental findings and false reassurance were largely absent.
- Significant gaps exist in explaining the complexity of PGT ethical issues.
- The Guardian reported on ethical issues more frequently than the Daily Telegraph.
- Ethical issues were predominantly presented through personal narratives.
Conclusions:
- Public concern focuses more on ethical implications than scientific details of PGT.
- Media coverage needs improvement to comprehensibly address the complex ethical issues of PGT for the public.
- Enhanced public understanding of PGT's ethical landscape is essential.
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