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Reducing Health Care Disparities in Sickle Cell Disease: A Review

LaTasha Lee1, Kim Smith-Whitley2,3, Sonja Banks4

  • 1Department of Clinical Research & Leadership, School of Medicine and Health Sciences, George Washington University, Washington, DC, USA.

Public Health Reports (Washington, D.C. : 1974)
|October 11, 2019
PubMed

Insights

Sickle cell disease (SCD) disproportionately affects minority groups, facing significant health inequities and underfunding. Addressing these disparities is crucial for improving care and reducing the disease burden.

Area of Science:

  • Hematology
  • Public Health
  • Health Disparities

Background:

  • Sickle cell disease (SCD) is an inherited blood disorder prevalent in African American and Hispanic American populations.
  • SCD leads to severe health complications like infections, stroke, and kidney failure, impacting life expectancy.
  • Racial/ethnic minorities experience healthcare disparities linked to poorer SCD outcomes.

Purpose of the Study:

  • To review health inequities affecting individuals with SCD.
  • To describe existing programs aimed at improving SCD care.
  • To identify strategies for reducing inequities, enhancing care, managing costs, and alleviating disease burden.

Main Methods:

  • Literature review of health inequities in SCD.
  • Analysis of current care improvement programs.
  • Identification of actionable steps to address disparities.

Main Results:

  • SCD is underfunded compared to other orphan diseases, despite its impact.
  • Significant research and pharmaceutical investment gaps exist for SCD.
  • Existing programs show promise but require further development and support.

Conclusions:

  • Health inequities in SCD are substantial and require urgent attention.
  • Increased funding and targeted interventions are necessary to improve outcomes.
  • A multi-faceted approach is needed to reduce disparities and ease the burden of SCD.

Keywords:
Medicaidaccess to carecommunity health centershealth care disparitiessickle cell disease

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