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Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors

Jessica Warnink-Kavelaars1, Anita Beelen2,3,4, Tine M H J Goedhart2

  • 1Amsterdam UMC, University of Amsterdam, Rehabilitation, Amsterdam Movement Sciences, Meibergdreef 9, PO 22660, 1100 DD, Amsterdam, Netherlands. j.warnink@amsterdamumc.nl.

European Journal of Pediatrics
|October 18, 2019
PubMed

Keywords:
AdolescenceConnective tissue diseasesDisability and health for children and youthInternational classification of functioningMarfan syndromeParticipationQualitative research

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