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Maintaining Safety and Planning for the Future.

Candice Allen, Karla K Fehr, Sarah S Nyp

Journal of Developmental and Behavioral Pediatrics : JDBP

|October 19, 2019

Summary

This case study highlights safety concerns for a child with autism spectrum disorder and intellectual disability. It emphasizes the need for enhanced safety measures and future care planning for vulnerable individuals.

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Area of Science:

Developmental Pediatrics
Behavioral Psychology
Disability Support Services

Background:

A 12-year-old boy with autism spectrum disorder, intellectual disability, and attention-deficit/hyperactivity disorder requires ongoing medical and behavioral management.
He lives with his great-great-aunt, his legal guardian, who has health issues and is in her mid-70s.

Observation:

The child exhibits concerning behaviors, including nocturnal wandering and attempting to "cook" unsupervised.
Safety interventions such as door alarms and GPS devices have been implemented with varying success.
The guardian is hesitant to explore residential care options due to fears of separation and mistreatment.

Findings:

The current home environment presents significant safety challenges due to the child's behaviors and the guardian's limitations.
The lack of a robust safety plan and the guardian's reluctance to consider external support pose risks.
There is an urgent need for comprehensive planning to ensure the child's long-term safety and well-being.

Implications:

Recommendations should focus on supporting the guardian, enhancing in-home safety, and addressing her concerns about residential care.
Exploring respite care, in-home support services, and specialized training for the guardian may be beneficial.
Facilitating open communication with the guardian regarding long-term care options and ensuring her involvement in decision-making is crucial.