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Attitudes towards child life specialists and their utilization within pediatric urology
Preeya K Mistry1, Bradley A Morganstern, Haris Ahmed
1The Smith Institute for Urology, New Hyde Park, New York, USA.
Insights
Certified Child Life Specialists (CCLS) benefit pediatric urology patients, with most providers recognizing their value. However, CCLS are under-utilized during invasive procedures, highlighting a need to improve access and utilization for enhanced patient quality of life.
Area of Science:
- Pediatric healthcare
- Psychosocial support in medicine
- Urology patient care
Background:
- Certified Child Life Specialists (CCLS) are recognized by the American Academy of Pediatrics for addressing psychosocial concerns during hospitalization.
- CCLS assist pediatric patients and families in navigating medical systems to reduce stress through coping strategies.
- This study investigates provider perceptions and utilization of CCLS within pediatric urology.
Purpose of the Study:
- To explore pediatric urology providers' perceptions of Certified Child Life Specialists (CCLS).
- To assess the utilization patterns of CCLS in pediatric urology settings.
- To identify potential barriers and benefits of CCLS involvement in pediatric urology care.
Main Methods:
- A Survey Monkey questionnaire was distributed to members of the Society for Pediatric Urology (SPU).
- Providers were surveyed regarding their experiences with and perceptions of CCLS.
- The survey focused on CCLS implementation and their perceived impact on health-related quality of life (HRQOL).
Main Results:
- A 34.1% response rate (n=107) was achieved.
- 87.9% of providers reported CCLS interaction with their patients.
- Over 95% of providers believed CCLS positively impacted patient HRQOL, though utilization was limited in certain settings, particularly radiology.
Conclusions:
- The majority of pediatric urology providers recognize the benefits of CCLS.
- CCLS are under-utilized during invasive urological procedures, a time of high patient anxiety.
- Understanding provider perceptions and practice patterns is crucial to overcoming barriers and increasing CCLS utilization to improve patient quality of life.
Introduction:
The American Academy of Pediatrics views Certified Child Life Specialists (CCLS) as "an important component of pediatric hospital based care to address the psychosocial concerns that accompany hospitalization." CCLSs help patients and parents navigate the complex medical system in order to minimize psychosocial and emotional stress by implementing age appropriate coping skills. This survey explores the perceptions towards CCLS and their utilization with pediatric urology.
Materials And Methods:
A Survey Monkey questionnaire was developed and distributed to Society for Pediatric Urology members (SPU) (n = 314). Providers were queried about CCLS implementation and their perception regarding CCLS's role in improving health related quality of life (HRQOL).
Results:
There was a 34.1% response rate (n = 107). Ninety-four providers (87.9%) reported CCLS interaction with their patients and greater than 95% of providers felt CCLS imparted some degree of benefit to their patients' HRQOL. Only 4.7% felt CCLS offered no benefit to the patients. CCLS were consistently used in a minority of inpatient and outpatient settings and never in the radiological setting. They were used at least 50% of the time by the most responders in inpatient and radiological setting and nearly the same in the ambulatory surgery setting.
Conclusions:
This survey illuminates that the majority of providers interact with CCLS in clinical settings and believe their involvement is beneficial. However, CCLSs are under-utilized during invasive urological procedures where patient anxiety is high. By understanding perceptions of providers and their practice patterns we can overcome barriers to CCLS use and improve their quality of life.
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