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What is it like to use a BCI? - insights from an interview study with brain-computer interface users
Johannes Kögel1, Ralf J Jox2, Orsolya Friedrich3
1Institute of Ethics, History and Theory of Medicine, LMU Munich, Lessingstr. 2, 80336, Munich, Germany. johannes.koegel@med.uni-muenchen.de.
BMC Medical Ethics
|January 8, 2020
Summary
Brain-computer interfaces (BCIs) empower users, enhancing social participation and self-definition. While presenting challenges, users find BCIs beneficial for regaining capabilities and enriching lives.
Area of Science:
- Neuroscience
- Human-Computer Interaction
- Bioethics
Background:
- Brain-computer interfaces (BCIs) present ethical challenges including safety, autonomy, and privacy.
- Existing literature highlights concerns regarding psychosocial identity and consent in BCI use.
- This study investigates BCI users' lived experiences and their social and ethical implications.
Purpose of the Study:
- To assess BCI users' self-perceptions and attitudes towards the technology.
- To explore the social and ethical implications of BCI use from the users' perspective.
- To understand how BCIs impact users' sense of agency and self-definition.
Main Methods:
- Nine semi-structured interviews were conducted with individuals using BCIs for medical purposes.
- Interview transcripts were analyzed using the Grounded Theory coding method.
- Qualitative data provided insights into user experiences and perceptions.
Main Results:
- BCI users view themselves as active agents, with the technology influencing their self-definition and social participation.
- BCIs offer opportunities for retaining or regaining human capabilities, though they can also challenge user experiences.
- Users perceive the benefits of BCIs, such as promoting valuable qualities, as outweighing potential risks.
Conclusions:
- BCI technology is highly valued for enhancing agency, participation, and self-definition.
- BCIs can restore and enhance human characteristics and abilities, enriching users' lives.
- The technology is seen as a means to enrich life rather than fundamentally altering human nature.

