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Ethics in Research

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Related Experiment Video

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Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

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Understanding User Involvement in Research in Aging and Health.

Susanne Iwarsson¹, Anna-Karin Edberg², Synneve Dahlin Ivanoff³

¹Lund University, Sweden.

Gerontology & Geriatric Medicine

|January 8, 2020

Summary

User involvement in aging and health research, exemplified by the UserAge program, enhances societal development. This research explores potentials, challenges, and priorities for impactful user engagement in science.

Keywords:

community disability frail older adults gerontology nursing public and patient involvement public health/public policy rehabilitation social work volunteering

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Area of Science:

Gerontology and Health Services Research
Sociology of Science and Technology

Background:

User involvement in research is increasingly recognized for driving societal development.
Effective integration of user perspectives in research is crucial for aging and health studies.

Purpose of the Study:

To identify potentials, problems, and challenges in aging and health research with user involvement.
To illustrate research priorities using the UserAge program as a case study.
To maximize the impact and enhance the quality of research through user engagement.

Main Methods:

The UserAge program involves user representatives in the development phase of research projects.
Researchers at four Swedish universities collaborate within this evolving program.
The program builds upon existing research incorporating user involvement.

Main Results:

The UserAge program aims to increase knowledge on the difference user involvement makes.
It seeks to evaluate the impact of research conducted about and with user involvement.
Empirical results, capacity-building, and modeling efforts are central to the program's outcomes.

Conclusions:

User involvement in aging and health research offers significant potential for societal impact.
The UserAge program provides a model for maximizing the benefits of user engagement in scientific endeavors.
Communicating findings broadly will influence both current practices and future research directions.