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Evaluating Data Quality of Newborn Hearing Screening.

Maria C Sanchez-Gomez1, Kelly Dundon1, Xidong Deng2

  • 1Carter Consulting Inc., Atlanta, GA.

Journal of Early Hearing Detection and Intervention
|January 9, 2020
PubMed
Summary

Early Hearing Detection and Intervention Information Systems (EHDI-IS) are crucial for tracking infant hearing health. While data reporting is generally consistent, improvements in accuracy and completeness are needed for specific infant populations.

Keywords:
Data QualityEvaluationFunctional StandardsLogic ModelSystem Attributes

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Area of Science:

  • Public Health
  • Health Information Systems
  • Pediatric Audiology

Background:

  • Jurisdictional Early Hearing Detection and Intervention Information Systems (EHDI-IS) are vital for monitoring infant hearing screening and follow-up.
  • These systems support EHDI programs in identifying and providing services to deaf/hard-of-hearing (DHH) infants.
  • Data quality and timeliness are critical for the success of EHDI programs.

Purpose of the Study:

  • To evaluate the accuracy, completeness, uniqueness, and timeliness of hearing screening data within EHDI-IS.
  • To assess the acceptability of EHDI-IS among data reporters.
  • To identify areas for improvement in data collection and reporting.

Main Methods:

  • Evaluations were conducted across 48 EHDI programs funded by the Centers for Disease Control and Prevention (CDC) from 2013-2016.
  • Data quality metrics (accuracy, completeness, uniqueness, timeliness) were assessed.
  • Reporter acceptability of the EHDI-IS was measured.

Main Results:

  • Most state EHDI programs receive newborn hearing screening results consistently from hospitals.
  • Data reporters demonstrate willingness to report according to established protocols.
  • Challenges remain in the accuracy and completeness of demographic data, data for transferred infants, and data for NICU infants.

Conclusions:

  • EHDI-IS effectively facilitate consistent data receipt for newborn hearing screening.
  • Reporter willingness to comply with reporting protocols is generally high.
  • Targeted interventions are necessary to enhance data accuracy and completeness for specific high-risk infant groups.