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Clinical data and Pediatric Quality of Life Inventory (PedsQL™) scores for children with duodenal atresia

Toby I Vinycomb1,2, Alison Browning1,2, Matthew L M Jones1,2,3

  • 1Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Australia.

Data in Brief
|February 15, 2020
PubMed

Insights

This study shares raw data on quality of life for children with duodenal atresia, using the PedsQL™ questionnaire. This data can inform future research on pediatric gastrointestinal and neonatal surgical conditions.

Area of Science:

  • Pediatric Surgery
  • Quality of Life Research
  • Clinical Data Management

Background:

  • Duodenal atresia is a congenital condition requiring surgical intervention.
  • Assessing quality of life is crucial for long-term outcomes in pediatric surgical patients.
  • Existing data on quality of life in duodenal atresia is limited.

Purpose of the Study:

  • To present raw data on health-related quality of life in children with duodenal atresia.
  • To provide a dataset for future research on pediatric gastrointestinal and neonatal surgical conditions.
  • To supplement findings from the "Quality of life outcomes in children born with duodenal atresia" article.

Main Methods:

  • Prospective data collection from a tertiary pediatric surgery hospital database.
  • Inclusion of demographic, clinical, and operative data.
  • Administration of the Pediatric Quality of Life Inventory (PedsQL™) 4.0 core and gastrointestinal modules.

Main Results:

  • Detailed participant responses to PedsQL™ items.
  • Calculated health-related quality of life scores.
  • Raw data available for reuse in related research.

Conclusions:

  • The presented dataset offers valuable insights into quality of life for children with duodenal atresia.
  • This data can support studies on pediatric gastrointestinal conditions, neonatal surgery, and trisomy 21.
  • Facilitates further investigation into the long-term well-being of affected children.

Keywords:
Congenital abnormalitiesDuodenal atresiaDuodenal obstructionIntestinal atresiaLong term outcomesQuality of life

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