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Assessing a Student With a Rare Disease.

Megan A Roesler1, Barbara Obst2

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Summary

A new assessment tool helps school nurses gather comprehensive health information for students with rare diseases. This supports nurses in addressing medical, cognitive, and behavioral needs within the educational setting.

Keywords:
Kennedy Krieger InstituteSHNICSpecialized Health Needs Interagency Collaborationassessment toolchildren with special health needs

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Area of Science:

  • Pediatric Health
  • School Nursing
  • Rare Diseases

Background:

  • School nurses require effective tools to manage complex student health needs.
  • Students with rare diseases present unique challenges in the educational environment.
  • Existing assessment methods may not adequately capture the multifaceted impact of rare diseases on students.

Purpose of the Study:

  • To introduce and describe the
  • Assessing a Student with a Rare Disease
  • tool.
  • To support school nurses in gathering comprehensive information about students with rare diseases.
  • To enhance the school nurse's role as a medical expert in educational settings.

Main Methods:

  • Development of the
  • Assessing a Student with a Rare Disease
  • tool by the Specialized Health Needs Interagency Collaboration program.
  • Introduction of the tool at a national conference (NASN's 51st annual conference).
  • The tool utilizes a comprehensive prompt to gather student health data.

Main Results:

  • The tool provides a structured approach to collecting information on student health conditions.
  • It facilitates the identification of potential impacts on medical, cognitive, and behavioral needs.
  • The tool aims to empower school nurses with detailed insights for student support.

Conclusions:

  • The
  • Assessing a Student with a Rare Disease
  • tool is a valuable resource for school nurses.
  • It enhances the ability to support students with rare diseases in schools.
  • This initiative promotes a collaborative approach to specialized health needs in education.