Using parent-reported experience measures as quality improvement tools in paediatric cardiothoracic services: making
Jo Wray1,2,3, Geralyn Oldham1
1Heart and Lung Directorate, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street London WC1N 3JH, UK.
Summary
Collecting parent feedback on pediatric cardiothoracic care is feasible using quality improvement methods. Parent experience data can drive healthcare improvements, though resource and sustainability challenges must be addressed.
Area of Science:
- Pediatric Healthcare Quality Improvement
- Patient Experience Measurement
- Health Services Research
Background:
- Parental feedback is crucial for assessing and enhancing pediatric healthcare quality.
- Existing parent experience data is underutilized for driving service improvements in child health.
- Systematic collection of parent experiences is needed to inform quality initiatives.
Purpose of the Study:
- To develop and implement a systematic process for collecting parent experience data in cardiothoracic services.
- To utilize quality improvement (QI) methodology to translate parent feedback into actionable changes.
- To assess the feasibility and impact of parent-reported experience measures (PREMs) in a specialist children's hospital.
Main Methods:
- Plan-Do-Study-Act (PDSA) methodology was employed to create parent-reported experience measures (PREMs).
- Quantitative and qualitative questionnaires were administered to parents of children receiving cardiothoracic care.
- Response rates and the development of specific-measurable-achievable-realistic-timely (SMART) action plans by clinical teams were key outcome measures.
Main Results:
- Seventeen surveys were developed, and 1876 parents received questionnaires, yielding a 30% response rate.
- Clinical teams created SMART action plans for 47% of the surveys, with some teams initiating a second cycle of data collection.
- Key challenges included resource limitations (time, finances, technology) and difficulties in implementing action plans, despite positive team engagement.
Conclusions:
- Parent-reported experience measures are practical and acceptable tools for healthcare quality improvement.
- Addressing challenges related to resources, training, and long-term sustainability is essential for maximizing the impact of PREMs.
- Continued efforts are needed to integrate parent feedback effectively into quality improvement cycles in pediatric healthcare.
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