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Patients' Knowledge and Attitude Toward Biobanks in Eastern Morocco
Saida Lhousni1, Fatiha Daoudi1, Ihab Belmokhtar1
1Genetics Unit, Medical Sciences Research Laboratory, Faculty of Medicine and Pharmacy of Oujda, University Mohammed Premier, Oujda, Morocco.
Biopreservation and Biobanking
|March 26, 2020
Summary
Moroccan patients largely support biobanking donation despite low awareness. Key factors influencing participation in biobanks include trust in research and data privacy concerns.
Area of Science:
- Public Health
- Biomedical Research
- Health Systems Integration
Background:
- Integrating biobanks into national health systems requires understanding patient perspectives.
- Limited patient awareness of biobanks necessitates research into attitudes and motivations for participation.
Purpose of the Study:
- To explore patient knowledge, attitudes, and motivations regarding biobanks in Morocco.
- To identify factors influencing patient willingness to participate in biobanking initiatives.
Main Methods:
- Face-to-face interviews with 1,133 patients in Eastern Morocco.
- Data analysis using SPSS to assess knowledge, attitudes, and willingness to participate.
- Investigated demographic associations and barriers to biobank participation.
Main Results:
- 97% of participants had no prior knowledge of biobanks.
- 80.7% expressed willingness to donate biospecimens and data for biobanking.
- Lack of trust in research and privacy concerns were primary barriers; 75% preferred one-time consent.
Conclusions:
- Despite low awareness, Moroccan patients show significant willingness to participate in biobanking.
- Building trust in biomedical research and ensuring data privacy are crucial for active biobank participation.
- Increased awareness campaigns are needed to promote wider engagement with biobanking.
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