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Goals of Parents Whose Infant Is in the Neonatal Intensive Care Unit: An Explorative Study
Sandra Fucile1, Jessica Samson, Jeremy Rockley
1Department of Paediatrics (Drs Fucile and Dow) and School of Rehabilitation Therapy (Dr Fucile, Ms Samson, and Mr Rockley), Queen's University, Kingston, Ontario, Canada.
Insights
Understanding parents' goals in the neonatal intensive care unit (NICU) is crucial for family-centered care. Identifying these goals, such as feeding and discharge, improves parent-provider communication.
Area of Science:
- Neonatal care
- Pediatric health
- Family-centered medicine
Background:
- Neonatal intensive care units (NICUs) strive for family-centered practices.
- Parental concerns and needs are often unmet.
- Parental goals in the NICU require better understanding for improved collaboration.
Purpose of the Study:
- To identify the specific goals of parents with infants in the NICU.
- To enhance communication and collaboration between parents and healthcare professionals.
Main Methods:
- A questionnaire was distributed to parents of infants in the NICU.
- Thematic analysis was used to analyze parents' recorded goals.
Main Results:
- 13 out of 23 questionnaires were returned (57% response rate).
- Mothers most frequently completed the questionnaires (n=9, 70%).
- Three primary themes emerged: feeding/weight gain, removal of medical equipment, and hospital discharge.
Conclusions:
- Understanding parental goals facilitates family-centered care in the NICU.
- Improved communication between parents and healthcare teams is essential.
- Future research with larger sample sizes is recommended to generalize findings.
Background:
The aim of many neonatal intensive care units (NICU) today is to promote a family-centered practice that addresses parental concerns and needs. However, the specific goals of parents are often unaddressed by the healthcare team. The aim of this study was to understand the goals of parents whose infant was in the NICU to enhance collaboration and communication between parents and health professionals.
Methods:
A written questionnaire was disseminated to parents whose infant was in the NICU at the Kingston Health Sciences Centre. A thematic analysis of the goals was completed to identify key emergent themes and their implications.
Results:
A total of 23 questionnaires were disseminated to parents and 13 (57%) were returned. Returned questionnaires were most often completed by the mother (n = 9, 70%), and a total of 40 goals were recorded. Three key emergent themes were identified, which included feeding and weight gain, eliminating medical equipment, and successful hospital discharge.
Implications For Practice:
Understanding the goals of parents whose infant was in the NICU can enhance communication between parents and their healthcare team, thus aiding the implementation of a family-centered practice.
Implications For Research:
Future larger sample sizes studies across several NICUs would increase the generalizability of results and garner a larger volume of data to establish significant trends between specific infant and parent demographic data and the associated goals.
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