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Bronchiectasis Information and Education: a randomised, controlled feasibility trial.

Katy L M Hester1,2, Vicky Ryan3, Julia Newton4

  • 1Population Health Sciences Institute, Newcastle University, Newcastle Upon Tyne, NE1 7RU, UK. katy.hester@ncl.ac.uk.

Trials
|April 16, 2020
PubMed
Summary

This study found it feasible to test a new information resource for bronchiectasis patients. High recruitment and retention rates suggest a full trial is possible, meeting patient needs for understanding and self-management.

Keywords:
BronchiectasisEducationExacerbationFeasibility studyInformationQualitative researchRandomised controlled trialSelf-management

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Area of Science:

  • Pulmonary Medicine
  • Health Informatics
  • Clinical Trial Design

Background:

  • Bronchiectasis is a chronic lung disease with increasing prevalence.
  • There is a significant need for improved patient information and self-management resources.
  • A novel patient information resource has been developed to address these needs.

Purpose of the Study:

  • To assess the feasibility of a multi-centre randomized controlled trial.
  • To determine the effect of a novel information resource on patient understanding and self-management.
  • To evaluate health outcomes in adults with bronchiectasis.

Main Methods:

  • An unblinded, single-centre, randomized controlled feasibility trial was conducted.
  • Participants were randomized (1:1) to receive a novel information resource or usual care.
  • Qualitative methods and feasibility outcomes (recruitment, retention) were integrated.

Main Results:

  • Sixty-two participants were randomized, with high recruitment (50%) and retention (97%) rates.
  • The information resource was used by 84% of participants and found useful by 93% of users.
  • Qualitative data indicated acceptability of the trial and intervention.

Conclusions:

  • The study design is feasible for a full-scale trial due to successful recruitment and retention.
  • High demand for the online information resource was observed globally.
  • The findings support further investigation into the resource's impact on bronchiectasis patient outcomes.