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Establishing a Cancer Registry in a Resource-Constrained Region: Process Experience From Ghana.

Joel Yarney1,2, Naomi O Ohene Oti1,2, Benedict N L Calys-Tagoe1,3

  • 1Accra Cancer Registry, Accra, Ghana.

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Summary

Ghana established the Accra Cancer Registry to improve cancer data quality. This population-based registry aims to provide a model for future cancer registries nationwide.

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Area of Science:

  • Public Health
  • Epidemiology
  • Cancer Research

Background:

  • Cancer data quality in Ghana was previously poor, ranked lowest in global analyses (GLOBOCAN 2012).
  • A critical need for a population-based cancer registry was identified as part of Ghana's cancer control strategy.

Purpose of the Study:

  • To establish a population-based cancer registry in Ghana.
  • To address the deficiency in cancer data quality and provide a model for future registries.

Main Methods:

  • The Accra Cancer Registry was established following Ghana's cancer control policy.
  • Utilized CanReg 5 software for standardized data collection.
  • Employed trained registrars for active data abstraction from hospital and pathology services.
  • Implemented a governance structure with an advisory board, technical committee, and registry staff.
  • Defined a specific geographic coverage encompassing nine municipal districts.

Main Results:

  • The registry operates under a defined policy and administrative structure.
  • Received external support from Stanford University, the African Cancer Registry Network, and the University of Ghana.
  • Features a well-defined population base across nine municipal districts.
  • Active data abstraction ensures comprehensive data collection.

Conclusions:

  • The Accra Cancer Registry serves as a model, learning from past failures.
  • Aims to centralize national cancer data collection.
  • Enhances cancer surveillance and control efforts in Ghana.