Parent attitudes and child personality traits in hemophilia: a six-year longitudinal study

Using standardized instruments, personality traits of twenty-two hemophilic boys and child-rearing attitudes and practices of their parents were evaluated at the beginning and end of a six-year period, during which psychosocial services were provided in a comprehensive care hemophilia program. The children changed significantly in a positive direction on two traits, enthusiasm and self-reliance. No significant negative personality trait changes were found. Scores remained within the normal range on the remaining traits, with the exception of a significant positive elevation on the intelligence dimension at both pre- and posttest. Mothers and fathers scored positively compared with parental attitude norms during both the initial and follow-up evaluations, without significant changes in overall mean scores. Strong relationships were revealed between individual changes in child personality and parent attitude scores. Despite the fact that between pre- and posttest boys with hemophilia and their parents became aware of the risk of contracting AIDS from blood product use, personality traits and parent child-rearing attitudes remained positive.