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Information booklets for patients with inflammatory bowel disease
1City Hospital, Nottingham, Great Britain.
International Disability Studies
|January 1, 1988
Summary
Patient information booklets on inflammatory bowel disease (IBD) prognosis and cancer risk can reduce anxiety for many, despite potential initial distress. These resources are valuable for patient education and doctor-led counseling, leading to reassurance and fewer consultations.
Area of Science:
- Gastroenterology
- Patient Education
- Health Communication
Background:
- Patients with inflammatory bowel disease (IBD) seek comprehensive information regarding their condition.
- Key concerns include disease prognosis and potential cancer risks.
Purpose of the Study:
- To evaluate the impact of providing detailed information booklets to IBD patients.
- To assess patient reception, anxiety levels, and the utility of these booklets in clinical practice.
Main Methods:
- A study involving the distribution of information booklets to patients with inflammatory bowel disease.
- Analysis of patient responses, including acceptance rates, anxiety changes, and refusal rates.
Main Results:
- While up to 13% of patients experienced distress, 30-39% reported reduced anxiety after reading the booklets.
- Illustrations were found to be helpful, and patients demonstrated capacity to understand complex information.
- Booklet acceptance varied, with up to 34% refusal, but they effectively reached non-self-help group members.
Conclusions:
- Information booklets are a valuable tool for educating inflammatory bowel disease patients about prognosis and cancer risk.
- These resources can effectively reduce patient anxiety and enhance doctor-patient communication, potentially decreasing consultation frequency.
- Despite some initial patient apprehension and refusal rates, the overall benefit in terms of reassurance and information dissemination is significant.