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Blockchain, consent and prosent for medical research
Sebastian Porsdam Mann1,2, Julian Savulescu3, Philippe Ravaud4,5
1Department of Communication, University of Copenhagen Faculty of Humanities, København, Denmark sebastian.porsdammann@philosophy.ox.ac.uk.
Journal of Medical Ethics
|May 6, 2020
Summary
Blockchain technology offers secure and auditable medical data sharing for research. It enhances patient autonomy, research efficiency, and data justice through smart contracts and a new concept called "prosent."
Area of Science:
- Medical Informatics
- Bioethics
- Blockchain Technology
Background:
- Traditional medical research consent models face challenges due to technological advances and data complexity.
- Increasing participant numbers and retention difficulties hinder current research practices.
Purpose of the Study:
- To introduce blockchain technology as a solution for secure and auditable medical data sharing.
- To explore the automation of consent, data collection, and management using blockchain-based smart contracts.
- To demonstrate how blockchain supports bioethical principles in research consent.
Main Methods:
- Utilizing blockchain technology for secure and auditable medical data sharing.
- Implementing blockchain-based smart contracts for automating consent, data collection, access management, and analysis.
- Introducing and defining the concept of 'prosent' for proactive, condition-based data consent.
Main Results:
- Blockchain enables secure, auditable, and efficient medical data sharing.
- Smart contracts automate key aspects of research data management and consent.
- Blockchain enhances patient autonomy, research beneficence, and data justice.
Conclusions:
- Blockchain technology presents a robust framework for modernizing medical research consent and data management.
- The proposed 'prosent' concept empowers stakeholders with greater control and proactive consent capabilities.
- Blockchain facilitates more efficient, ethical, and inclusive medical research.
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