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Thriving with Down syndrome: A qualitative multiple case study
Talia Thompson1,2, Devadrita Talapatra1, Cynthia E Hazel1
1Department of Teaching and Learning Sciences, Morgridge College of Education, University of Denver, Denver, CO, USA.
Background:
Down syndrome (DS) is the most common genetic cause of intellectual disability. Prior research has primarily focused on associated medical problems and skill deficits. This study takes a novel positive psychology approach by examining critical individual characteristics and environmental factors that facilitate exceptional quality of life for people with DS.
Method:
A qualitative multiple case study design was used to document the lives of four adults thriving with DS. Thriving was defined as high subjective well-being coupled with continued personal development.
Results:
Descriptive contexts were provided for each case along with four overarching themes: a supportive social ecology, high expectations for independence, advocacy, and strengths facilitating happiness. A new conceptual framework for understanding thriving with DS was proposed.
Conclusions:
These findings provide insight as to what is possible for people with DS, including ideas for future research and practice to promote thriving in the DS population.
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