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Digital Support for Self-Management in Children with Diabetes: Understanding Their Needs and Developing a Design
Nicole Safavi Andersen1, Louise Hedrich Haugaard1, Sissel Bøgh Pedersen1
1Department of Communication and Psychology Aalborg University Denmark.
This study explored digital tool needs for type 1 diabetes self-management in youth. User-centered design is crucial, prioritizing children's practical needs over advanced technology for effective diabetes self-care.
Area of Science:
- Digital health
- Pediatric diabetes management
- Human-computer interaction
Background:
- Type 1 diabetes requires lifelong self-management.
- Digital tools offer potential support for pediatric diabetes self-management.
- User needs vary significantly across stakeholders.
Purpose of the Study:
- To investigate the requirements for a digital tool supporting self-management in children and adolescents with type 1 diabetes.
- To inform the development of a virtual universe for pediatric diabetes care.
Main Methods:
- Interviews with project managers and healthcare professionals.
- Workshop observations with healthcare professionals and learning specialists.
- Focus group interviews with children with type 1 diabetes and their parents.
Main Results:
- Healthcare professionals favored virtual/augmented reality learning materials.
- Parents sought security, control, and localized educational resources.
- Children desired simple, smartphone-based tools for efficient self-management, like carbohydrate counting and insulin calculation.
Conclusions:
- Developing digital diabetes self-management tools requires a strong focus on the end-users' everyday lives and practical needs.
- Technological capabilities should be secondary to user-centered design principles.
- Adolescents with type 1 diabetes prioritize discreet, efficient tools for daily management.
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