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Primary palliative care: Skills for all clinicians
Sue S Sreedhar1, Colleen Kraft2, Sarah Friebert3
1Critical Care and Palliative Care, Johns Hopkins All Children's Hospital, St. Petersburg, Florida, United States.
Insights
Pediatric palliative care (PPC) is crucial for children with serious illnesses. Integrating PPC principles early improves quality of life and outcomes for patients and families.
Area of Science:
- Pediatrics
- Palliative Care
- Healthcare Management
Background:
- Increasing numbers of children have life-threatening and life-limiting conditions.
- The American Academy of Pediatrics advocates for universal access to pediatric palliative care.
- High-quality, team-based care is essential for improving outcomes.
Purpose of the Study:
- To emphasize the importance of pediatric palliative care for all children.
- To highlight the benefits of early palliative care integration.
- To guide pediatric clinicians in incorporating palliative care principles.
Main Methods:
- Review of current recommendations and practices in pediatric palliative care.
- Emphasis on collaborative, team-based approaches.
- Focus on integrating palliative care principles into daily clinical practice.
Main Results:
- Collaborative, team-based methods improve physical, emotional, and cognitive outcomes.
- Early palliative care involvement enhances coordinated care.
- Palliative care principles can be integrated by all pediatric clinicians.
Conclusions:
- Pediatric palliative care is essential for improving the quality of life for seriously ill children.
- Early integration of palliative care principles leads to better patient and family outcomes.
- All pediatric clinicians can contribute to delivering effective palliative care.
Abstract:
The number of children with life-threatening and life-limiting conditions is increasing, requiring an individualized approach and additional supportive care. The American Academy of Pediatrics has called for pediatric palliative care to be available to all children who would benefit.1,2 High quality pediatric palliative care is essential for these children. Collaborative team-based methods focused on improving quality of life have shown to improve outcomes in physical, emotional, and cognitive domains.3 Palliative care involvement at the time of diagnosis rather than just at the end of life has moved coordinated care upstream. All clinicians can and should deliver palliative care. The Joint Commission recommends having patient-centered palliative care services available for children, and the Centers for Medicare and Medicaid Services is reimbursing clinicians for this coordinated care. This article details how all pediatric clinicians can positively influence the care of seriously ill children by incorporating palliative care principles into their daily care, resulting in better outcomes for their patients and families.
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