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Updated: Dec 15, 2025

Anogenital Distance and Perineal Measurements of the Pelvic Organ Prolapse POP Quantification System
Published on: September 20, 2018
The completeness and accuracy of the Norwegian Female Incontinence Registry
Ole A Dyrkorn1,2, Anne C Staff1,2, Sigurd Kulseng-Hanssen3
1Department of Obstetrics and Gynecology, Oslo University Hospital, Oslo, Norway.
The Norwegian Female Incontinence Registry (NFIR) is a reliable data source for monitoring incontinence surgery quality and research. Registry completeness improved significantly, reaching 99% by 2017, ensuring comprehensive data for women
Area of Science:
- Urology
- Health Services Research
- Medical Informatics
Background:
- Medical quality registries are crucial for monitoring treatment quality and supporting research.
- The Norwegian Female Incontinence Registry (NFIR) was established in 1998 to enhance surgical quality and research for female urinary incontinence in Norway.
Purpose of the Study:
- To evaluate the completeness and accuracy of the NFIR.
- To identify any temporal or hospital volume-related variations in data accuracy.
Main Methods:
- Validation of 300 randomly selected patients' records against the NFIR.
- Comparison of NFIR data with the Norwegian National Patient Registry for completeness (2008-2017).
- Assessment of data accuracy using intraclass correlation coefficients and Cohen's kappa.
Main Results:
- Registry completeness increased from 61% (2008) to 99% (2017).
- National coverage expanded to all 38 public departments by 2017.
- Excellent accuracy was confirmed for both continuous (ICC >0.94) and categorical (kappa >0.86) data, with no significant differences based on hospital volume or time.
Conclusions:
- The NFIR is a dependable resource for quality assessment and research in incontinence surgery.
- The registry's improved completeness ensures near-complete data capture for all relevant procedures in Norway.
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