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Parental perceptions and expectations concerning speech therapy-related cleft care - a qualitative study
Cassandra Alighieri1, Wim Peersman2, Kim Bettens1
1Department of Rehabilitation Sciences, Ghent University, Corneel Heymanslaan 10, 2P1, 9000 Gent, Belgium.
Parents of children with cleft palate (CP ± L) desire visible speech progress and clearer information on treatment, prognosis, and home care from specialized speech-language pathologists (SLPs). This highlights the need for improved communication and patient-centered care in cleft speech therapy.
Area of Science:
- Speech-language pathology
- Craniofacial anomalies
- Parental perceptions
Background:
- Speech outcomes are critical for children with cleft palate (CP ± L).
- Parental expectations and perceptions of speech therapy are under-researched.
- Understanding these perspectives is vital for effective cleft care.
Purpose of the Study:
- To investigate parental perceptions and expectations regarding speech therapy for children with CP ± L.
- To identify key themes influencing parental satisfaction with cleft speech care.
Main Methods:
- Qualitative study using semi-structured interviews with 11 parents of 9 children with CP ± L.
- Data collected from a multidisciplinary craniofacial team.
- Thematic analysis performed using NVIVO software.
Main Results:
- Three major themes emerged: service provision, patient-centered care, and seeking healthcare.
- Parents prioritized effective service, interdisciplinary collaboration, and SLP expertise.
- Key parental desires included clear information on progress, home transfer, and prognosis.
Conclusions:
- Parental expectations emphasize the need for specialized speech-language pathologists (SLPs) and visible progress in children with CP ± L.
- Enhanced communication regarding treatment, prognosis, and home integration is crucial.
- Addressing parental insights can improve the quality of speech therapy for cleft care.
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