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Context Factors Facilitating and Hindering Patient Participation in Dialysis Care: A Focus Group Study With Patients
Liselott Årestedt1, Caroline Martinsson2, Carina Hjelm2
1Faculty of Health and Life Sciences, Department of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden.
Background:
Safe health care of good quality depends on structured and unceasing efforts to progress, promoting strategies tailored to the context, including elements such as patients' preferences. Although patient participation is a common concept in health care, there is yet limited understanding of the factors that facilitate and hinder it in a healthcare context.
Aims:
This paper identifies what patients and health professionals depict in terms of enablers and barriers for patient participation in dialysis care.
Methods:
An explorative qualitative design was applied with seven focus group discussions with patients, staff, and managers across different types of hospitals, with the texts analyzed with content analysis.
Results:
The dialysis context represents three key elements-people, resources, and interactions-that can both enable and hinder patient participation. Both barriers and facilitators for patient participation were found to reside at individual, team, and organizational levels, with a greater number of enabling factors implied by both patients and staff.
Linking Evidence To Action:
While the dialysis context comprises opportunities for progress in favor of patient participation, a shared understanding of the concept is needed, along with how contextual factors can facilitate conditions for participation by patient preferences. In addition, the most favorable strategy for implementing person-centered care is not yet known, but to facilitate patient participation from a patient perspective, creating opportunities to enable staff and patients to share a common understanding is needed, along with tools to facilitate a dialogue on patient participation.
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