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The Role and Value of a Paediatric Specialist Neurodevelopmental Diagnostic Service: Parental Perceptions
Katingo Giannoulis1, Fran Beresford1, Hilton Davis2
1Michael Rutter Centre for Children & Young People, Maudsley Hospital, London, UK,
Insights
Parents found a specialist neurodevelopmental disorders service valuable for diagnosis and advice. The service improved parent satisfaction and reduced concerns, highlighting its effectiveness for children not diagnosed at birth.
Area of Science:
- Pediatric Neurodevelopmental Disorders
- Family-Centered Healthcare Services
Background:
- Investigated parental perceptions of a specialist service for children with neurodevelopmental disorders.
- Focused on disorders not evident at birth, requiring specialized assessment.
Purpose of the Study:
- To explore parental views on the role and value of a specialist child and family service.
- To assess user satisfaction and outcomes of attending the specialist clinic.
Main Methods:
- Collected data from 37 families using interviews and questionnaires.
- Gathered information before and twice after clinic attendance to track expectations and experiences.
Main Results:
- 87% of parents deemed clinic attendance worthwhile, expecting diagnosis and educational advice.
- Parents felt the clinic best met diagnostic needs, preferring regional centers for specialist opinions.
- Clinic attendance improved parent-child relationship satisfaction and decreased parental concerns.
Conclusions:
- The specialist service is perceived as valuable by parents for diagnosing neurodevelopmental disorders.
- The service positively impacts parental satisfaction and reduces concerns regarding their child's development.
- Regional specialist centers are preferred for obtaining diagnoses and expert opinions for these children.
Background:
This study was undertaken to explore parental perceptions of the role and value of a specialist service for children and families. This service offers assessment and diagnosis of children with neurodevelopmental disorders of the kind that are not evident at birth.
Method:
Information was collected from 37 families on expectations and experience of clinic attendance, user satisfaction and outcome through interviews and questionnaires, once before and twice after clinic attendance.
Results:
87% of parents found clinic attendance worthwhile, with most expecting to be provided with a diagnosis and advice on education. Parents perceived that the clinic was best able to meet their diagnostic needs and they reported that they were more able to obtain a diagnosis and a specialist opinion at a regional centre than at local clinics. Parent satisfaction with the parent-child relationship improved following clinic attendance and parents' self-identified concerns about their child decreased.
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