Chronic Fatigue Syndrome: An Evaluation of a Community Based Management Programme for Adolescents and their Families

Young people with chronic fatigue syndrome (CFS), families and clinicians may differ in their attributions about CFS and consequently in their approach to treatment. Research that clarifies the best treatment approaches is clearly needed. We have sought to develop a model that engages young people and their families in a collaborative way. The approach adopts an optimistic and holistic stance using an active rehabilitation model paying attention to the integrated nature of the physiological and psychological aspects of the illness.

This small study set out to evaluate this approach from a service user perspective. Semi-structured interviews were carried out with young people and their parents separately in order to elicit their views on key treatment elements and their perceived degree of recovery.

Improvements are indicated in all key areas addressed and qualitative information suggests that families value this approach.

Further research is needed to address treatment issues for families who choose not to opt into the service model.