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Do Patients With Keratoconus Have Minimal Disease Knowledge?

Philipp B Baenninger1, Lucas M Bachmann2, Markus Ritzmann3

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|September 18, 2020
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Summary

Swiss patients with keratoconus possess limited knowledge about their condition, understanding only about a third of what corneal specialists expect. This knowledge gap may impact patient care and lead to misunderstandings.

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Area of Science:

  • Ophthalmology
  • Patient Education
  • Corneal Diseases

Background:

  • Keratoconus is a progressive eye condition affecting corneal shape.
  • Patient understanding of keratoconus is crucial for effective management.
  • Current knowledge levels among patients require assessment.

Purpose of the Study:

  • To evaluate the extent of minimal keratoconus knowledge (MKK) among Swiss adult patients diagnosed with keratoconus.
  • To determine if patients possess the expected level of understanding regarding their condition.

Main Methods:

  • Defined minimal keratoconus knowledge (MKK) encompassing definition, risk factors, symptoms, and treatments.
  • Conducted a survey among 167 keratoconus patients across 5 specialized institutions.
  • Analyzed patient demographics, education, and disease experience for correlations with MKK.

Main Results:

  • No patient achieved 100% MKK; the average MKK was 35.2%.
  • Higher education showed a modest positive association with MKK, while MKK declined with age.
  • Disease duration, severity, and surgical history did not significantly improve MKK.

Conclusions:

  • Swiss keratoconus patients demonstrate a significant deficit in essential knowledge about their condition.
  • A notable discrepancy exists between healthcare providers' expectations and patients' actual knowledge.
  • Addressing this knowledge gap is vital for improving patient care efficiency and reducing misunderstandings.