Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

[Manual for Methods and Use of Routine Practice Data for Knowledge Generation].

Monika Klinkhammer-Schalke1,2, Thomas Kaiser3, Christian Apfelbacher4

  • 1Tumorzentrum Regensburg, Institut für Qualitätssicherung und Versorgungsforschung, Universität Regensburg, Regensburg.

Gesundheitswesen (Bundesverband Der Arzte Des Offentlichen Gesundheitsdienstes (Germany))
|September 22, 2020
PubMed

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Itch, Scratching, and Sleep Mediate the Association between Disease Severity and Quality of Life in Pruritic Dermatoses: A Cross-Sectional Study.

Dermatology and therapy·2026
Same author

Knowledge Gaps and Barriers to Care in Men with Postprostatectomy Incontinence: Evidence from the German ProKontinenz Trial.

European urology open science·2026
Same author

Cancer Frequencies and Screening in Individuals With Down Syndrome: A Comprehensive Nationwide Cross-Sectional Analysis.

JCO global oncology·2026
Same author

Social inequalities in return-to-work among colorectal cancer survivors in Germany.

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer·2026
Same author

Factors Associated With Parent-Reported Caries in Preschool Children From the KUNO-Kids Health Study-Repeated Cross-Sectional Analysis.

Community dentistry and oral epidemiology·2026
Same author

Providers' perspectives on implementing alert-based patient-reported outcome monitoring for stage IV breast cancer.

Journal of patient-reported outcomes·2026
Summary

Routine practice data, particularly from health registers, offers valuable insights for healthcare research. Standardized methods are needed for data consolidation, verification, and application to ensure high-quality evidence generation.

Area of Science:

  • Health Services Research
  • Medical Informatics
  • Data Science

Background:

  • Growing interest in utilizing existing healthcare data, especially from health registers.
  • Insufficient standardization and transparent presentation of methodological procedures for routine practice data.
  • Establishment of an ad hoc commission by the German Network for Health Services Research (DNVF) for routine practice data utilization.

Purpose of the Study:

  • To address the need for standardized and transparent methodologies in using routine practice data.
  • To develop a method guide for the appropriate use of care-related data.
  • To clarify the terminology, advocating for "routine practice data" over Real World Data (RWD) and Real World Evidence (RWE).

Main Methods:

  • Review of existing concepts and guidelines for generating and evaluating care-related data.

Related Experiment Videos

  • Analysis of best practice examples, particularly from oncology register data.
  • Development of a methodological manual for routine practice data.

    • Main Results:

    • Identified a lack of clear quality requirements and structured procedures for data consolidation, verification, and methodological application.
    • Demonstrated the potential of register data in oncology for guideline evaluation and deriving recommendations.
    • Proposed "routine practice data" as a more effective term than RWD/RWE to emphasize research quality.

    Conclusions:

    • There is a critical need to revise inconsistent requirements and develop a comprehensive method guide for routine practice data.
    • Standardized methods are essential for high-quality research using routine practice data, including register-based studies.
    • The proposed manual aims to enhance the transparent and effective use of routine practice data for evidence generation.