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Updated: Dec 8, 2025

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Family management ofchildren who experience sickle cell disease: a qualitative study
Elaine Cristina Rodrigues Gesteira1, Regina Szylit2, Maiara Rodrigues Dos Santos2
1Universidade Federal de São João del-Rei. Divinópolis, Minas Gerais, Brazil.
Objective:
to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework.
Methods:
a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis.
Results:
three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children.
Final Considerations:
family management knowledge of children with sickle cell disease provided a reflection on nurses' role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.
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