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Updated: Dec 7, 2025

Psychophysiological Assessment of the Effectiveness of Emotion Regulation Strategies in Childhood
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Psychophysiological Assessment of the Effectiveness of Emotion Regulation Strategies in Childhood

Published on: February 11, 2017

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Quality of life of children and families

Klajdi Puka1, Lauryn Conway2, Mary Lou Smith2

  • 1Department of Epidemiology & Biostatistics, Western University, London, ON, Canada.

Handbook of Clinical Neurology
|September 26, 2020
PubMed

Insights

Youth with neurocognitive developmental disorders and disabilities (NDD) experience lower quality of life (QOL). This impacts families, highlighting the need for comprehensive care and further research into NDD-related QOL.

Area of Science:

  • Neuroscience
  • Developmental Psychology
  • Public Health

Background:

  • Quality of Life (QOL) is a critical health outcome for chronic conditions.
  • Neurocognitive Developmental Disorders and Disabilities (NDD) significantly impact youth functioning and well-being.
  • Youth with NDD and their families report diminished QOL compared to general populations.

Purpose of the Study:

  • To examine the measurement of QOL in youth with NDD.
  • To review literature on QOL in youth with NDD and associated factors.
  • To explore the impact of NDD on parental QOL and family environment.

Main Methods:

  • Literature review of QOL measurement approaches (generic, disease-specific, proxy-reported).
  • Synthesis of studies comparing QOL in youth with NDD versus controls.
  • Analysis of factors influencing QOL outcomes in this population.

Main Results:

  • Youth with NDD exhibit poorer QOL due to comorbidities and psychosocial challenges.
  • Various methodological considerations affect QOL measurement accuracy.
  • Family environment and parental QOL are significantly compromised.

Conclusions:

  • QOL assessment is crucial for comprehensive care and clinical trials involving youth with NDD.
  • Addressing family and parental well-being is essential.
  • Further research is needed to understand and improve QOL for this population.

Keywords:
Attention deficit hyperactivity disorderAutism spectrum disorderDevelopmental coordination disorderEpilepsyFamily environmentIntellectual disabilityParentPsychosocialQuality of lifeYouth

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